My Child, A Gift from God, Stillborn Without A Skull

By Grace Loh, as told to Sophia Ng

My husband, Bryan, and I had been waiting for God to bless us with a second child. When we finally tested positive on a pregnancy kit, we were ecstatic.

Through the first 12 weeks, everything appeared healthy. But when I went in for a scan the 13th week, the sonographer found something amiss. She picked up the phone and immediately called her senior. I knew then that something was wrong. But I tried to control my emotions and keep myself level-headed, not wanting to make an outburst in public.

They sent me for scan after scan. Nearly four hours later, I was seated down by a consultant who broke the bad news to me and advised me to terminate the pregnancy. He set a date for me, and that was that.

My husband and I called our pastor and told him the news. He helped me realize that termination was abortion and said, “You need to reconsider this in the light of God’s Word.”

Inside, I was struggling. I wanted to terminate the pregnancy, but there was no peace. In my heart was a battle between my will and God’s will. I did not want to have to live through the first trimester of nausea and vomiting, and a tough delivery, knowing that I was not going to bring a child home. In that moment of confusion, I told God, “I want my way”, but I sensed Him saying, “That is not my way, child”.

The next day, I was in the car going down the expressway when these thoughts were racing through my mind, and I finally surrendered. I told God: “Regardless of what it is, I’m going to choose Your way.”

At that moment, the peace of God that surpasses all understanding just flooded me. This perfect peace guarded our hearts and minds for the months to come.


A Long Nine Months

But that did not mean we weren’t grieving.

I had never felt more depressed in my life. Our child, whom we knew was God-sent, was not going to live. I finally understood what it meant to be depressed—you are in a black hole that you just can’t get out of. You lose your zest for life and want to lie in bed and not do anything else. You can’t even pray because you just want to die. I remember feeling like this for days.

Depression also set in for Bryan once his logic wore off. But because of what we were going through, we saw our firstborn, Charity, who was then one-and-a-half, showing empathy for the first time. She went over, wiped his tears and said, “Papa, don’t cry.”

Friends and family responded differently to the news. Well-meaning people would say all sorts of hurtful things. Many told us, “Grace, you need to have faith that God will heal him”, “you didn’t pray enough” or “you didn’t believe enough.” I had to keep reminding myself that these people loved me and did not mean to hurt me.

Deep down, I knew that God was not going to heal my baby, and I was meant to go through this grief. I think it takes more faith to believe and continue to trust God amid negative, rather than positive circumstances.

Going through the purifying fire taught me to hope in God, instead of hoping for a circumstance. The Word of God doesn’t say He will definitely give us healing, or a good job, or a positive outcome. God never promised us these things. He says he will give us abundant life (John 10:10), but we learned that this abundant life is not found in the absence of trials or troubles, but in the presence of hope, joy, peace, and love even amidst the toughest moments.

Yes, I would have liked for God to heal our baby, but what if God, in His sovereignty, knew that it was not best for me, or the world?

Mature Christians who counseled us through all of this advised that we name the child. We had always wanted to name our first son Matthias, which means “gift of God.” Even though we knew the “gift” was going to die, we nevertheless named him Matthias in faith—knowing he was a gift, no matter what.



The Birth

Around my 38th week of pregnancy, I checked into the hospital as I was in a lot of pain. The doctors put me on oxytocin drip, which would help induce labour. At one point I felt Matthias writhing and thrashing inside me, but eventually he went quiet, and I fell asleep.

When the doctors came to examine me a few hours later, they found that my uterus had torn, and I was bleeding. They said I needed to undergo an emergency C-section. The doctors made me sign a whirlwind of papers I could barely understand, authorizing them to perform any procedures deemed needful. Then I was pushed into the operating room.

By the time I woke up from surgery and got to hold my baby, Matthias was already cold, stiff and blue. His skin was waxy and sticky.

The first question I asked Bryan was, “Is my uterus still there?” My uterus had ruptured and just missed a major artery. If it had torn anymore, I would’ve lost my uterus. That was my saving grace.


Experiencing Perfect Peace

We didn’t know what our state of mind would be after the birth, so we had made preparations for our various responsibilities. What we didn’t expect was the depth of peace we experienced. It was like God had put us in a bubble of perfect peace.

I had been afraid of the pain, the grief, and the cost of going through with our decision, but what I learned was that the grace of God will always be sufficient. No matter how hard the choice might seem, once you say “yes” to God, He is with you every step of the way. The peace of God protects you and the grace of God empowers you.

Through this trial, the Word of God came alive and this experience deposited a lot of gems in me, such as patience, forgiveness, understanding of the peace and grace of God, and learning to walk in faith and not by sight. Proverbs 3:5-6 taught me to trust the Lord even when I don’t understand what and why He’s doing something, simply because His thoughts and ways are higher than mine (Isaiah 55:8-9). These verses helped me to surrender my situation to God and respond as Mary did in saying, “Be it unto me” (Luke 1:38).

As Hillsong United so aptly wrote in Desert Song, “There is a faith proved of more worth than gold, so refine me, Lord, through the flame.” Throughout the trials, Charity was our rainbow, our sparkle and brought us out of the pit of depression with her joy and laughter. I treasure her so much. She also now understands life and death. She says, “I can’t wait to see didi (younger brother). When I go to Jesus, I will be so happy.”



Many children who understand death fear it, but she knows there is life after death. That is something we could have never taught her.


Through the Fire, Once Again

The grief still hits occasionally out of the blue. Nearly a year after Matthias’s passing, I received news that a close friend of mine was pregnant. It hit me hard and I felt a pang of jealousy. Why should she get a healthy pregnancy?

Shortly after, I noticed my tastes started to change and I was feeling a tad fatigued. A home pregnancy test confirmed that I was expecting for the third time.

Not everything is rosy with my rainbow baby. I started bleeding early on, and my gynaecologist discovered a blood clot inside. There’s still a threat of miscarriage. What’s more, the doctor has given a 20-30 per cent chance of my uterus rupturing again. If it happens outside of hospital, I could even lose my life.

In the past, if I were faced with the same circumstances, I would be freaking out from one scan to the next. Now, I think to myself that if baby lives, then so be it.

My hope is in God’s character, that regardless of the outcome, God’s will is best for me and there is a greater purpose. He is the anchor of our soul.

The grief doesn’t go away; the hole will always be there. But we do not grieve without hope, knowing there is peace in the grief and one day, we will be reunited in heaven.


5 replies
  1. Leslie Baker
    Leslie Baker says:

    Thank you for this article. My wife and I have never lost a child, (Thank God!) But we have had grief. Everyone has some type of grief in their lives.
    Your trials brought tears to my soul. It also brought something I am unable to name.
    The pain of my life is a little less, my hope a little greater, and God’s mysteries more blessing the questions.
    Your tragedy may answer few of your question (Or His peace may have made those questions unimportant for you.) They certainly brought peace to my history. And that is enough.

  2. Angelia
    Angelia says:

    Thank you for sharing! My second baby also had anencephaly. I have a three year old and a one year old too. Hugs to you.

  3. Madeline Twooney
    Madeline Twooney says:

    Grace, Bryan and Charity, l send you lots of hugs from Bochum, Germany, and pray that your pregnancy goes well without any further complications. Thank you for sharing your story.

  4. Melissa
    Melissa says:

    wow, I cannot imagine the pain and the toughness of going through all that but I am glad to hear your story.
    I hope I will remember Matthias and your story as a reminder that God is still gracious and loving even when we go through real difficult moments.
    Am really glad that you came out victoriously. 🙂
    Take care, Sophia. God bless. 😀


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